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About Rasmus's father.
My name
is Bo and I am the father of 4 beautiful children.
The
reason that I step forward and make this website is that one of my
children, Rasmus, has infantile autism.
To
discover that your child has this terrible disability is
indescribable cruel and it seems so pointless.
You get through
the
entire emotional range. Why us? What do we do now?
How do
you get on from here?
What can
we do so Rasmus get the best possible chance of a decent life?
How do
you avoid neglecting Rasmus's 3 siblings in the busy daily live?
Paradoxically, it is not Rasmus's autism which makes the
situation so difficult for us, but it is the fact that our
experience is that the established health-care here in Denmark
do not have the knowledge and expertise required to provide
Rasmus the right treatment.
The vast majority of municipalities do not even try to relate to
the national autism plan which the country's leading
competences have made as a guide for practitioners, policy
makers and parents. We are witnessing a strange kind of
stagnation in the autism treatment here in Denmark since we, in
some areas, have completely closed our eyes to the development
that is happening on a global level within the autism treatment
and it seems like Denmark is trying to maintain a monopoly
special institution environment (Without other options) where
almost everybody within the broad autism spectrum uncritical is
is
placed so that, mostly autism inexperienced, psychologists can
do, the best of their ability, to put together eclectic
treatments which by nature is completely without evidence and
without external supervision and control.
Imagine that we, here in Denmark who is a pioneer in so many
areas, are so far behind in this field.
The fact that we are seeing the situation like this results in
that the entire responsibility for Rasmus's future rests heavily
on our shoulders.
We must,
by ourselves, identify the globally, most evident treatment and
then do everything possible to make sure that our dear Rasmus
receives the right treatment, in order to secure him a dignified
life.
I must
admit that this is a really tough task and everything indicates
that this task will be a lifelong task for me.
In the
time of this writing, it is about 1 year ago that we were
convinced that Rasmus had infantile autism and I feel now I have
a surplus of energy to write a little about our experiences, and
our choices, so that the parents who are getting in the same
situation might could be inspired to be better able to tackle
the challenge of their life: to be the parent of a child with
a lifelong disability.
We would
not advise other parents in the same situation simply to choose
like us.
The best
advice we can give is for you to collect information on all
available treatments and then to make the choice you think is
best for your child.
This
website is dedicated to my dear son, Rasmus, who so completely
has changed my view of life. |