Welcome to Rasmus's website. Click on flag for Danish version

Start page
About the father
The suspicion
What is autism
Waiting for Diagnose
Choosing a treatment
A dignified life
Rasmus's development
ABA as we see it
After 1½ Year
Feedback form
Links
photos
Restricted Acess

 

About Rasmus's father.

My name is Bo and I am the father of 4 beautiful children.

The reason that I step forward and make this website is that one of my children, Rasmus, has infantile autism. To discover that your child has this terrible disability is indescribable cruel and it seems so pointless.

You get through the entire emotional range. Why us? What do we do now? How do you get on from here? What can we do so Rasmus get the best possible chance of a decent life? How do you avoid neglecting Rasmus's 3 siblings in the busy daily live?

Paradoxically, it is not Rasmus's autism which makes the situation so difficult for us, but it is the fact that our experience is that the established health-care here in Denmark do not have the knowledge and expertise required to provide Rasmus the right treatment. The vast majority of municipalities do not even try to relate to the national autism plan which the country's leading competences have made as a guide for practitioners, policy makers and parents. We are witnessing a strange kind of stagnation in the autism treatment here in Denmark since we, in some areas, have completely closed our eyes to the development that is happening on a global level within the autism treatment and it seems like Denmark is trying to maintain a monopoly special institution environment (Without other options) where almost everybody within the broad autism spectrum uncritical is is placed so that, mostly autism inexperienced, psychologists can do, the best of their ability, to put together eclectic treatments which by nature is completely without evidence and without external supervision and control. Imagine that we, here in Denmark who is a pioneer in so many areas, are so far behind in this field. The fact that we are seeing the situation like this results in that the entire responsibility for Rasmus's future rests heavily on our shoulders. We must, by ourselves, identify the globally, most evident treatment and then do everything possible to make sure that our dear Rasmus receives the right treatment, in order to secure him a dignified life.

I must admit that this is a really tough task and everything indicates that this task will be a lifelong task for me.

In the time of this writing, it is about 1 year ago that we were convinced that Rasmus had infantile autism and I feel now I have a surplus of energy to write a little about our experiences, and our choices, so that the parents who are getting in the same situation might could be inspired to be better able to tackle the challenge of their life: to be the parent of a child with a lifelong disability.

We would not advise other parents in the same situation simply to choose like us. The best advice we can give is for you to collect information on all available treatments and then to make the choice you think is best for your child.

This website is dedicated to my dear son, Rasmus, who so completely has changed my view of life.

 

 

 

 

Startside | Start page | About the father | The suspicion | What is autism | Waiting for Diagnose | Choosing a treatment | A dignified life | Rasmus's development | ABA as we see it | After 1½ Year | Feedback form | Links | photos | Restricted Acess

Dette sted blev sidst opdateret 30. juli 2008